Friday, March 30, 2018

One tough cookie

Emily was taken off the ventilator around noon yesterday! She is still breathing well without it.

I had my days mixed up. Tomorrow (Saturday), not today, is when the MRI will be done. We won't get results back until 12-24 hours after the MRI. Tomorrow morning at 6am they will begin the process of slowly warming her body back up to a normal temp. It will take about 6 hours to do so. The MRI will likely happen tomorrow night or Sunday morning at the latest.

They track her brain activity through these crazy probes, and we can see her brain waves on a monitor - it's fun to see how she responds to us! But the point of the monitor is to see if she has any seizures, which she has not. Phew!

After she is off the cooling mat, we can finally, finally hold her. I can also begin nursing her, too. She will still be fed through her tube, but I can't wait to hold my sweet babe and nurse. Today she began taking in my milk through the tube, about 6ml every 3 hours. The rest of her nourishment is coming from something called TPN, which from what I understand, is a super-charged fluid full of vitamins and everything good.

Last night they had to give her more platelets and are still keeping an eye on that. She is off of antibiotics. Her glucose levels have still been low; they are stopping it today and will retest a few times to see how she does. She is on morphine and atavan to keep her comfortable. When it starts to wear off, she voices that she's not too happy - I'd be the same if my body temp was that low! We heard a little cry for the first time this morning. It was actually very reassuring. I want her to tell me all about it!

Just a couple hours ago, we had a little scare with one of her tubes. Blood was clotting at the end of it which they spotted during a heart ultrasound this morning. But, when they took the tube out, the clot came with it... so relieved about that.

I got to see Oliver today which did my heart good. He'll meet Emily tomorrow once we can hold her - we didn't want to scare him with tons of cords and stuff. She'll still have a bunch of tubes and cords, of course, but at least we can wrap her up and hide them.

My milk is coming in:) It makes me feel good to be able to do something for her. My heart just aches to hold her.

Thank you for your prayers and keep em coming!
-Pray that the damage is none to minimal.
-Pray that she will be able to stabilize on her own once she's off the cooling mat.
-Pray that her blood pressure increases - it's consistently low.
-Pray for overall healing.
-Pray for wisdom for all her doctors.

I'll try to update tomorrow, too. Love you guys:)

3 comments:

  1. Jill
    Praying praying praying!!
    For all the above and More!
    Stay strong mama bear and baby bear!!

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  2. Praying for you all Jill! Jesus heal her brain and heart fully. Break any trauma off Jill, Jared or Emily from the birth and give them all supernatural peace and strength. -Marie

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  3. Reading your posts bring me back. My heart breaks for you. My heart baby is 12 he has similar specialties with his heart as your sweet baby E. I know how hard it is to imagine but it does get easier. I promise. Sending heart ((hugs)) and prayers
    Marcie

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