Well. The craziness of this past week has just delayed the part we knew was coming: watching Emily for signs of heart fatigue and gauging when she may need the initial surgery. She is nursing for about 10 minutes at a time but then gets pretty tuckered out. Our main goal is to get her feeding and gaining weight. We may need to start her on some meds to ease the strain on her heart, but the doctors want to watch her a bit before jumping into that decision. The next step after medication would be clamping off her pulmonary vein to slow the flow of blood to her lungs, easing the strain on her heart.
As much as I want to just fully nurse Emily, the cardiologist reminded me this morning that it's unrealistic to expect that. I knew a few months ago it was very likely Emily would need a combination of nursing with taking bottles of my milk, but fortified, to give her a caloric boost and to ease her fatigue. Bottle feeding is less work for babies. I loved nursing Oliver and nursing Emily has brought me out of a dark place, so this is hard. It's one of those times as a parent where you're trying to set aside what you want so badly for your child to see what it is they actually need. The practical side of me is whispering: so she'll take a few bottles of your milk a day. Big deal...
I cannot put into words how much I miss Oliver. Last night I had an awful dream where I kept losing him in a crowd. Ugh. I know he's in good hands, having the time of his life with Grandpa Wes. Those two are a riot together. I want to take care of Oliver and Emily at the same time, but it's not possible right now, and nothing explains being separated from your child and it's out of your control.
Clearly the theme of today's post is mom guilt. Sheesh.
Oh - we're in a boarding room with Emily! Easily the happiest day since we've been here. Last night I fell asleep watching her in her bassinet and so much felt right. Being near my girl and being able to hold her is easing the stress of all this. Jared said the scariest part of last week was watching me slip into a dark depression. I know what he's talking about. Nothing alleviated my desire to hold her, to see her open her eyes, to hear her cry, to listen to those cute newborn sounds.
No, mommin' ain't easy. And all the women in Cub Foods at 9pm for the third time in a week, or those staring at a pregnancy test wondering why it's so hard to just get two blue lines, or those browsing Pinterest feeling like a failure because their kid had chicken nuggets for dinner instead of this gluten-free-tofurkey-keto-something-or-other meal they just pinned but know they will never ever make, raised their hands in agreement and shouted, "amen, sister!"
Amen, Sister! You are INCREDIBLE, Jill Pill. Your strength and grace are inspiring. That little family of yours is so lucky to have such a wonderful mother and wife. You are all in my continuous thoughts and prayers. Love and endless hugs, sweet girl!
ReplyDeleteThank you Kristen!! Love you!!
DeleteIt's hard when you feel like you can't give your child what they need the way you want. I went through not being able to breastfeed with Calvin. Ultimately, pumping and formula were what he needed. My friend gave me the best advice whenever inwas in a hole feeling like a failure. She reminded me that anyone can hold a bottle and feed a baby, but only you can be your child's mother. Making sure your daughter gets what she needs is what makes you an amazing mother. Being able to give her breast milk in any form is a great bonus! Sending prayers your way!
ReplyDeleteThat is so, so true. I meant to reply to this earlier but when I read this, I felt so much better. Sounds dorky, but honestly, fed is best! We've got enough guilt to worry about besides how we feed our babies!
DeleteKeep going! Your strength and wisdom are so inspiring. ❤️
ReplyDeleteThanks Christie!!
DeleteLove this! So glad you are in the same room and able to hold and feed her now! Little victories lead to big ones. :) Continuing to pray! - Marie
ReplyDeleteThank you, Marie!! :)
DeleteHi Jill! You and your sweet family have been on my mind and heart every day. I am so grateful to hear of the progress Emily has made! You are an amazing, strong MOM and woman of God!! Emily and Oliver are blessed to have you! You will continue to be in my prayers...praying that God gives you peace, the doctors wisdom and guidance, and little Emily STRENGTH and complete healing from any brain damage!! He is the God of miracles! Stay strong my sweet friend!! Lots of love! Laura
ReplyDeleteThank you Laura!! I can't tell you how much I appreciate you standing in prayer for us!!
DeleteI hear ya girl! When we had Joshua in the NICU we were talking to one of his doctors regarding the struggle he was having gaining weight, and it broke my heart when he basically said we couldn’t treat Joshua like a “normal baby”. So he had a combination of feeding tube, nursing and bottle feeding. The bottle feeding was what worked for him so that’s what we did (I pumped and he got my milk that way). You’re right, it’s not easy, but you are wise in putting first baby’s needs before your wants. Give yourself grace and take it one day at a time. And ask for help when you need it. :) You’re not alone!
ReplyDeleteOh, Karey, when I read this I felt so much better. It was so good to hear of other moms who have also gone through this - there's sooo much pressure to breastfeed, but sometimes that just can't happen, like with you guys, too. Thank you!!
DeleteMy heart and thoughts are with you! You have such a beautiful soul, and Mommin' is, in my eyes, the most rewarding thing in the world, but also the MOST difficult thing. I am thinking of you and your family and sending you positive energy. Jenn
ReplyDeleteSo true!! Thank you Jenn!
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